FAMILIES FOR EFFECTIVE AUTISM TREATMENT
What is FEAT-FMC:
Families for Effective Autism Treatment Fresno/Madera County (FEAT-FMC) is a non-profit organization of parents and professionals, dedicated to help families with children who have received the diagnosis of Autism Spectrum Disorder (ASD), including Autism, Pervasive Developmental Disorder (PDD), or Asperger’s Syndrome. It offers a network of support where families can meet each other and discuss issues surrounding autism and treatment options. FEAT-FMC has a Board of Directors that meets monthly to discuss issues, establish priorities, and vote on the direction of the organization.
As this year winds down the things we can be grateful for... far out-number the challenges that life has placed in our path.
Life starts with our family, immediate and extended. Our life is not guaranteed or perfect. What we "do" with our life is more important and self satisfying.
Fortunately occasionally a total stranger will reach out and offer to assist the parent in difficult times.
This is why Parents can be grateful for life's helping hand. Autism is one of those particularly winding pathways. Skill, determination, perseverance, and patience is the common traits of Parents that are successful in advocating for precious Special Needs Children.
FEAT-FMC is dedicated to partnering with Parents that are mired in the process of helping their Children with Autism. This End of Year News Letter will reach the homes of 7,780 + subscribers World-wide that care about our Children with Autism.
Thank you Subscribers and Parents for your concerns.
The FEAT-FMC board is always looking for volunteers looking to give back to their community. If you have a strong interest or skills and want to promote Autism Awareness check out this link. I Want to Help
The California Teachers Association recognizes one of our own. This is an article on Fresno State University (FSU), Assistant Professor Amanda Adams PhD., and the Central California Autism Center (CCAC).
Professor Dr Marianne Jackson, Head of the Department of Psychology and the Applied Behavior Analysis (ABA) Program, has elevated FSU to the cutting edge of Autism Therapies. Assistant Professor Dr. Adams has dedicated her educational career to developing evidence and accepted ABA therapy for children with autism. While there are emerging new therapies with promising futures, the CCAC is proof positive of the value of ABA. The exciting thing is the undergraduates and graduate students of FSU will go on to put into practice the teachings of FSU and Dr. Adams. Finally the CCAC has data and documentation to substantiate their programs. The key to the success of the CCAC is the number of small rooms that are reserved for individual one-on-one intensive intervention at an early age.
FEAT is proud to be a contributor to the success of CCAC by making a grant available in 2010, 2011, and again in 2012 for their program.
Thank you FSU, Dr. Marian Jackson, Dr. Amanda Adams, and CCAC for giving families and children with autism hope and a future.
Volume 15 Issue 3 - November 2010
By Sherry Posnick-Goodwin
Amanda Adams watches student Angeline Molina work with Karlye at CSU Fresno.
Dominic, 5, sits inside a tiny room for some one-on-one time with Elizabeth Milan, a psychology graduate student at CSU Fresno. He converses with her just like any child his age, but flaps his arms once in a while when he’s excited.
“Grab the dice,” says Milan when this happens. The youngster holds on to the dice and calms himself as he continues the conversation.
His occasional “stimming,” or flapping, is barely noticeable to the casual observer. But when he first arrived for therapy at the Central California Autism Center (CCAC) at the college campus, it was a different story. He would “stim” or engage in repetitive, self-stimulating body movements constantly. He had difficulty paying attention and interacting with his peers because he lacked communication and social skills.
Amazingly, after intensive therapy at the CCAC, Dominic has lost his autism diagnosis.
“We can’t say that he is cured, but we might say he’s in recovery from autism,” says Amanda Adams, the California Faculty Association member who founded the program three years ago and oversees its operation. “After intensive work with us, he no longer qualifies for an autism diagnosis.”
Five other graduates of the program have also lost their diagnosis, she says proudly.
Adams, a Board Certified Behavior Analyst, joined the Fresno State faculty in 2006 as an assistant professor in the Psychology Department. Prior to that, she spent a decade working with children who have autism in a variety of settings, including university programs and school districts. As the director of CCAC, she conducts research in autism and trains students at Fresno State in using Applied Behavior Analysis (ABA), so they can provide early intervention to autistic children.
Adams and her cohort of trained students work intensively with preschoolers as young as age 3 who have been diagnosed with autism.
“With autism, the earlier the intervention, the better,” says Adams. “Research has shown that early detection and behavioral intervention are the most important things when it comes to treatment. It’s important to do screening right away. Parents may fear a false positive, but even if these kids went into treatment without being autistic, it’s like going into a superpowered preschool program. And no harm can come of that.”
Some children spend eight hours a day at the clinic to learn language, communication and emotional recognition. Children “copy and model” their student therapists while playing games, using manipulatives, answering questions and other interactions. It seems like fun and games, but they are learning how to communicate, take turns, and “read” emotions and moods in others. There are no sensory break areas here; instead therapists try to “redirect” a child in positive ways before that child has a meltdown.
“Eight hours a day may seem like a lot of time here for a very young child, but research shows that up to 40 hours a week of intervention delivers the best outcome,” says Adams. “Our goal is to help them catch up, and we can’t waste time.”
The program offers treatment for children on all levels of the autism spectrum using ABA, which grew out of the work of psychologist B.F. Skinner and uses reinforcement to encourage learning. Therapists break down skills ranging from simple to complex into repeated practice, usually in a one-on-one setting. When a child performs a task well, he or she is rewarded with a cracker or other incentive, such as being able to use the computer or play with a puzzle.
ABA has been criticized as a treatment that is harsh or robotic. However, Adams says, ABA has evolved over time, and at her clinic the interaction between youngsters and trained college students is playful and enjoyable. Graduate students working with the children are indeed very affectionate during their sessions, and make the behavioral therapy seem more like playtime.
“Lots of research now shows that neurological abnormalities can change, and that neurons in the brain can actually change when exposed to different kinds of teaching,” says Adams. “It’s not unlike a brain injury that people can recover from. We don’t know if a child would have gone through these changes neurologically and improved on their own, but teaching in an ABA structured manner increases the speed of their skill acquisition.”
Even when the youngsters answer questions correctly — about shapes and colors, for example — the question is asked again and again. The reason, says Adams, is that sometimes children with autism give “rote” answers without being aware of their meaning.
A little girl named Karlye, for example, was practicing to recognize facial emotions, such as angry, happy, sad, scared and surprised. When she answered a question correctly she was rewarded, but she forgot the correct answer within minutes.
“A regular child may take 10 times to learn the color red, while it may take an autistic child 100 times,” says Adams. “Parents who seek out our type of program are not looking for a quick fix.”
Parents meet in groups weekly and individually with therapists every other week to learn how to integrate ABA into a child’s life at home. There is also a component for siblings, so they learn positive ways to interact with their brothers and sisters.
“Our center-based model not only delivers high-quality treatment, but gives parents support and a place to go,” says Adams. “Sometimes parents of children with autism feel isolated. Here, they can meet other families with similar experiences and help each other deal with the stress and challenges of having a child with autism.”
While the student therapists conduct intensive one-on-one therapy with the children, graduate students watch behind one-way mirrors to supervise the activities and record their observations. Their observations are providing research as to which strategies — reinforcement, building rapport and pre-exposure to concepts — yield the best results.
“We definitely need to find out more about autism,” says Adams. “The figures show that we are dealing with an epidemic, and it looks like the disease is going to be a mystery for a while.”
To learn more about the Central California Autism Center, visit www.csufresno.edu/ccac.
The information and resources on the Families for Effective Autism Treatment-Fresno/Madera County (FEAT-FMC) Website are for educational and informational purposes only. Information provided through The Site should not be used as a substitute for care by a qualified Developmental Pediatrician, Pediatric Neurologist, Behavioral Psychologist, Behavior Analyst, Speech and Language Pathologist, Attorney, or other appropriate professional.